Today is Liam's 1st anniversary of his heart surgery. In a way another birthday since they did have to stop his heart for a few moments. Writing that almost stops my own heart. What a wild year the last year has been! Liam ended up having an appointment down at Phoenix Children's Hospital today with his gastroenterologist. What a weird feeling driving up to the hospital knowing I would only be there for an hour and yet having a wave of apprehension wash over. Thankfully that apprehension left as soon as it came and we were able to play. I never thought of hospitals as fun, I still don't, and yet Liam and I have a different kind of time at the hospital where we end up playing and laughing. Today, I needed the laughter and the snuggles just a little more.
The gastrroenterologist sent in a referral for Liam to receive an evaluation to find out if he is eligible for an intensive feeding therapy program. This is not the first time I have received the recommendation to check in with this program. The program is 6 weeks in Phoenix with Liam receiving support around eating everyday. I don't know all the details but the thought of driving to Phoenix, or having our family split for 6 weeks has deterred me from really searching out if this is something that would be beneficial. I think I have been hoping that Liam would miraculously start eating on his own. I guess we are being given another option, the option of getting Liam the most beneficial help he can have, and we are willing.
To help ease the day, Liam and I traveled to Jerome to meet up with my dad, sister, and niece for a few hours. We played in the park, watching kids go down the slide, climb bars, and run around. I knew I wanted to get Liam in the swings so when the swings were open I jumped on the chance to play. Liam had so much fun! He is quite enamored with his cousin Aria! I am so grateful he has the chance to get to know his cousins and learn so much from them! What a gift to have this little being just a year ago, receive heart surgery to present day, playing on a swing, laughing! He is our miracle!!
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